Films to trigger conversations about what is important in the healthcare environment at the end of life
Research shows that the healthcare environment plays an important role in people’s well-being, social relationships and experiences of everyday life. However, there is a lack of knowledge about how different environments for end of life care are experienced by those who live and work in them, and how they can be improved.
In the research project “Place and Space in end-of-life care” we want to learn more about what matters to people in different care environments. We therefore invited people who were nearing the end of their life, elderly people, staff, close friends and relatives to photograph three aspects of the environment in which they were staying that were important to them, positively or negatively. The participants were enrolled in specialized palliative care in an inpatient unit or at home, or else they were in an acute care hospital or elder care facility. With the photographs as a starting point, the participants then told the researchers about what was important to them in these settings.
We have used these participants’ pictures and stories to make three short films, each about 6 minutes long. The films have been used in our research projects to stimulate conversations about what can be supportive in an end-of-life setting, and what may need to be improved in different environments for end-of-life care.
The films are available to the public, and as part of our research, we would like to learn more about how they are spread and used.
After answering the questions below, you will be directed to a page with links and passwords to the films. It is possible that the research team may contact you to hear what you thought about the films, if you used them and how, if they have been useful, and if so, how .
If you have questions or would like more information, please contact the project leader, Ida Goliath, phone: +47 (0) 8 524 865 33, mail: email@example.com
Karolinska Institutet is responsible for data collection.